August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States. Topics: Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed National Standards Regulation of College Disability Programs Review of College Disability Programs Public Access to Information about College Disability Programs
Post-Secondary Education Brain Injury Program Protocols as developed by the Brain Injury Network (BIN) Article dated 9-9-09 This section discusses the Brain Injury Network recommendations for nationwide protocols for postsecondary level college programs for students with brain injuries. These protocols were developed by the Brain Injury Network in the years 2005-2006. Let us keep in mind that many people with brain injuries have very few options for rehabilitation from their injuries. One of the few available, affordable, resources for cognitive retraining, or training, is the postsecondary educational system....Therefore, we recommend the creation of nationwide protocols for all postsecondary education programs for students with brain injuries. (In fact, we espouse “national standards for college programs”.)
Article on Brain Injury Advocacy from the Brain Injury Network web site. BIN is an abi survivor advocacy organization. "We also believe in collective-advocacy by and for our survivor community. Collective-advocacy is the process by which we people with acquired brain injuries organize, formulate, collaborate, reach consensus and articulate for our collective survivor community's interests.... Our advocacy reflects our concerns and spells out some particular policies and protocols that we believe will be in the best interests of our community. Please study our position statements. Please initiate and carry out policy that will promote our policy concerns. Thank you."
The Brain Injury Network - ABI Advocacy by Survivors Cause on Facebook. Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community.
Why We Need Collective Advocacy Article: We survivors speak best regarding our issues and regarding advocacy and public policy invovling our brain injury survivor community. This site is dedicated to the world-wide brain injury community and especially to those who wish to participate in collective advocacy via the Brain Injury Network, a survivor advocacy organization.
The Traumatic Brain Injury and Other Health Programs Enhancement Act (S ... the effectiveness of providing assisted living services to veterans with TBI to ...
We at the Brain Injury Network survivor advocacy organization recommend the retirement of the term Persistent Vegetative State. In lieu of PVS, we ask that the medical community adopt the term “Persistent Wakeful but Unaware State” (PWUS). This term includes the requisite components of the diagnosis which are wakefulness yet unawareness. In the alternative, we have noted that on occasion the term Persistent Unaware State (PUS) is used, but it is not quite as illustrative as PWUS, in our lay persons’ opinion. However, it is clear to us, the brain injury survivor community that neither PWUS nor PUS would be so insensitive, dehumanizing or charged a term as PVS. Source: Brain Injury Network
