August 1, 2006: Brain Injury Network (BIN) is calling for a system of regulation, review and standards nationwide for utilization in college and other post-secondary disability programs. The Brain Injury Network, a survivor-led and operated association of people with acquired brain injuries from traumatic brain injury (tbi), stroke, tumor, illness and other abi categories, is advocating for national standards for acquired brain injury programs at colleges and universities. Indeed, international standards are needed. But since the Brain Injury Network originates in California, U.S.A., we are first calling for standards to be implemented in the United States of America.... It has dawned on us that new laws are needed to protect adults with cognitive challenges who attend colleges all across the United States. Topics: Regulation, Review and Standards For College and Other Post-Secondary Level Disability Programs Are Needed National Standards Regulation of College Disability Programs Review of College Disability Programs Public Access to Information about College Disability Programs
Post-Secondary Education Brain Injury Program Protocols as developed by the Brain Injury Network (BIN) Article dated 9-9-09 This section discusses the Brain Injury Network recommendations for nationwide protocols for postsecondary level college programs for students with brain injuries. These protocols were developed by the Brain Injury Network in the years 2005-2006. Let us keep in mind that many people with brain injuries have very few options for rehabilitation from their injuries. One of the few available, affordable, resources for cognitive retraining, or training, is the postsecondary educational system....Therefore, we recommend the creation of nationwide protocols for all postsecondary education programs for students with brain injuries. (In fact, we espouse “national standards for college programs”.)
Article on Brain Injury Advocacy from the Brain Injury Network web site. BIN is an abi survivor advocacy organization. "We also believe in collective-advocacy by and for our survivor community. Collective-advocacy is the process by which we people with acquired brain injuries organize, formulate, collaborate, reach consensus and articulate for our collective survivor community's interests.... Our advocacy reflects our concerns and spells out some particular policies and protocols that we believe will be in the best interests of our community. Please study our position statements. Please initiate and carry out policy that will promote our policy concerns. Thank you."
The Brain Injury Network - ABI Advocacy by Survivors Cause on Facebook. Please help brain injury survivor advocates raise public awareness about issues of importance to our survivor community.
The survivor board of directors approved public policy position statements of the Brain Injury Network (BIN), a survivor advocacy US national and international organization. The organization has been operational in Santa Rosa, Ca. since 1998. Two key missions of the Brain Injury Network are to formulate public policy that will best serve people with acquired brain injuries and to advocate for said policies on a USA national and international level. The organization has developed over 70 policies on behalf of the brain injury community with more policies in development. Additionally, policy dissemination is an ongoing project of the Brain Injury Network. The entire focus of the Brain Injury Network is survivors of acquired brain injuries. Policy Topics as of 6-15-11:
Safety First
Ability Rights ABI (Acquired Brain Injury) Subclassification Hierarchy Advocacy Agencies Advocate Competency Advocates: Disclosure Assessments Assisted Living Facilities
Best Practice Guidelines Bicycle Helmet Law Building Code Standards Brain Injury Community
Civil Rights Classification of TBI Clinical Research Cognitive Retraining (also called Cognitive Therapy or Cognitive Training) Community Reintegration (Reintegrative Services) Comprehensive Health Reform Conflict of Interest Counselor Training Crime
Department of Mental Health Dignity Disability Rights and Issues Disclosures, Advocates Disclosures, Medical Providers Disclosures, Researchers Disclosures, Web Sites Doctor Education Drug Companies
Empowerment, Patient
Financial Institutions Florescent Lighting Funding Priorities for Survivors
Gold Standard Research Studies
Helmet Law High School Graduation Hospital Privacy Hospital Settings Human Research Guidelines Human Rights
Identification as People Incarcerated Criminals with TBI
Law Abiding Survivors (We are the great majority.) Law Enforcement Least Restrictive Living Environment Legal Rights Local and County Services Local Services vs. National Centers; Costly Duplication Living Environments Locked Facilities
Mandated Reporter Law Medical Device Makers Mental Illness
National Centers; Costly Duplication Nursing Home Placements
On-Line Networking Web Sites On-Line Recruitment of Patients Organizations or Providers Offering Money to People with Brain Injuries or the Families of People with Brain Injuries
Patient Data Harvesting Patient Empowerment Patient Recruitment and Covert Devices Online to Recruit Patients to Medical Research Studies Patient Recruitment Methodology Online or through Social Media Persistent Vegetative State (PVS) Persistent Wakeful but Unaware State (PWUS) Physician Disclosures Post-Acute Medical Environments PostConcussion Syndrome Post-Secondary Education Post-Secondary Programs Post-TBI Syndrome Diagnosis, Research and Treatment Privacy On-Line Privacy Settings on Web Sites Designed for Brain Injury Survivors Profiting from Exposing Brain Injury Survivors' Identities Psychologist Training Psychotropic Drugs, Use of PTSD (Post Traumatic Stress Disorder)
QEEG
Raising Money to "Promote" Medical Research Recruitment Methodology Removal of Life Support Research Studies
School Age Children with ABI Skiing and Helmets Social Community and On-Line Networking Websites Social Communities for People with Brain Injuries Social Media Societal Norms and Conventions Sports or Athletics Activities: A Good Mind for Life is more important than a Trophy Stakeholders Stigma and Brain Injury Strokes are not TBI's Subclassification Hierarchy of Acquired Brain Injury (ABI) Support Group Facilitation Survivor Advocacy Survivor Advocates Survivor Identity, Exposure of Survivor Priorities Survivor Social Communities Survivor Stories in Media
TBI is a Subset of ABI Terminology The Term "Survivor" Third Party Stakeholders
Why We Need Collective Advocacy Article: We survivors speak best regarding our issues and regarding advocacy and public policy invovling our brain injury survivor community. This site is dedicated to the world-wide brain injury community and especially to those who wish to participate in collective advocacy via the Brain Injury Network, a survivor advocacy organization.
"The purpose of BrainLife is to collect and offer to brain tumor patients, caregivers and medical/health professionals, references to the latest published medical sources in the field of brain (and other CNS) tumor research and treatment....The places of origin are: peer-reviewed journals and medical databases. Some meeting proceedings are included too. The sources (abstracts, references and full-text articles) are republished with their original contents." This web site is certified by the Health on the Web Foundation. (HON certified.)
http://www.brainlife.org/database.htm
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"BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI.... BrainLine serves anyone whose life has been affected by TBI. That includes people with brain injury, their families, professionals in the field, and anyone else in a position to help prevent or ameliorate the toll of TBI." "BrainLine is funded by the Defense and Veterans Brain Injury Center, the Primary Operational TBI Component of the Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury, through a subcontract award with the Henry M. Jackson Foundation for the Advancement of Military Medicine." Address: BrainLine.org WETA 2775 South Quincy Street Arlington, VA 22206 Phone: 703.998.2020 E-mail: info@BrainLine.org
http://www.brainline.org
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