New listings

BIN is pleased to announce that a new policy statement was adopted by the BIN Board of Directors on Oct. 16, 2011. The BIN Board of Directors is comprised of brain injury survivors. The policy is entitled Stigma, Marginalization and Stereotypical Thinking Regarding People with Acquired Brain Injuries.

We at the Brain Injury Network survivor advocacy organization recommend the retirement of the term Persistent Vegetative State. In lieu of PVS, we ask that the medical community adopt the term “Persistent Wakeful but Unaware State” (PWUS). This term includes the requisite components of the diagnosis which are wakefulness yet unawareness. In the alternative, we have noted that on occasion the term Persistent Unaware State (PUS) is used, but it is not quite as illustrative as PWUS, in our lay persons’ opinion. However, it is clear to us, the brain injury survivor community that neither PWUS nor PUS would be so insensitive, dehumanizing or charged a term as PVS.
Source: Brain Injury Network

Policy Statement from the Brain Injury Survivor Community Regarding Post-Acute Medical Environments, Assisted Living Facilities and Nursing Home Placements for People with Brain Injury; Use of Psychotropic Drugs

Source: Brain Injury Network

"These leaders with traumatic brain injuries show that many survivors can work independently and selflessly for the greater good of our brain injury survivor brain injury community. Many have worked with little fanfare and little acknowledgment of their work. We wish to extend our thanks to these trail blazers. We hope they are pleased to be listed in this honor roll of contributors." Honor Roll of early TBI Survivor Leaders.
Source: tbisurvivors.net

People with traumatic brain injuries (TBI) have the same human rights afforded to other human beings.
Any abridgement of a tbi survivor’s natural and/or legal rights must be given full scrutiny by appropriate legal authority.
Source: tbisurvivors.net
Author: Sue Hultberg, MA, JD

Brain Injury Network press release regarding the human rights issues of people with acquired brain injuries. MarketWire Press Release Dated 1--11-11

1-11-11

Fundamental Human Rights, Legal Rights, and Civil Rights for People with Brain Injuries; the Brain Injury Survivor Movement; Our Collective Identity and Common Purpose; the Human, Legal and Civil Rights Issues of People with Brain Injuries
Source: Brain Injury Network

Allen Institute for Brain Science's online atlas gives scientists new view of the human brain. April 12, 2011.

This Cause on Facebook supports the efforts of the Brain Injury Network to advocate on behalf of the acquired brain injury (abi) community.

Brain Injury Network's Traumatic Brain Injury Group on Facebook. Includes a chat feature. (This group is for people with brain injuries only.)